What have big donations done for the Big Data Study on severely ill patients at the Open Medicine Foundation?
Last year the Open Medicine Foundation (OMF) received more than US$1,650,000 in anonymous donations towards the End ME / CFS project-Severely Ill Chronic Fatigue Syndrome Big Data Study. Four large donations from families with loved ones with ME / CFS made up the largest portion, while more than $400,000 was donated by the patient community around the world.
Technology companies in Silicon Valley have also volunteered to help in the analysis phase of the Study, for free or at a low cost.
These donations are speeding up the research, says Linda Tannenbaum, Executive Director at the Open Medicine Foundation. Tannenbaum’s daughter has ME / CFS.
“This money meant the Big Data Study increased the types and number of tests conducted,” Tannenbaum said.