As a mother, there is no greater calling than to care for your child—and when my daughter Amy fell ill with ME/CFS nearly eight years ago, I knew I would do whatever it took to support her. Watching her go
In 2016, Open Medicine Foundation (OMF) hosted the first of four in-person ME/CFS Research and Community Symposiums at Stanford University, each drawing strong attendance. During the COVID-19 pandemic, the Research Symposium transitioned to a virtual format, expanding access for researchers
Types of Biosamples From the Desk of Dr. Danielle Meadows,Vice President of Research Programs & Operations Last month I talked more in depth about ethics review as a critical part of the first stage of the research process when conducting
Each year on August 8, Severe ME/CFS Day, we pause to recognize the immense challenges faced by those living with the most debilitating form of ME/CFS. It’s a day to acknowledge the suffering, honor resilience, and remember the lives that
The 17th Invest in ME Research International ME Conference (IIMEC17) took place on May 30, 2025, in Cambridge, United Kingdom, marking the final event of International ME Conference Week 2025—a series of collaborative events featuring workshops, strategic meetings, and scientific
Today, we are pleased to share a new publication, Steroid Dynamics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Case-Control Study using Ultra Performance Supercritical Fluid Chromatography Tandem Mass Spectrometry. The Heart of the Matter OMF’s research centers in Uppsala and Melbourne
The Director of OMF’s Ronald G. Tompkins Harvard ME/CFS Collaboration, Dr. David Systrom, recently attended the International ME/CFS Conference 2025 held in Berlin, Germany. As part of the conference, he gave two presentations—one on circulatory dysfunction, and another on a
We’re excited to share a new publication from OMF’s Collaborative Center at Montreal titled: “SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis.” The Heart of the Matter The team at OMF’s Collaborative Center at Montreal published a paper
From the Desk of Dr. Danielle MeadowsVice President of Research Programs & Operations In the past, I’ve shared some information about the peer-review publication process—the last stage of the research process—and the concept of a preprint. We recognize that the
What is an IRB or Ethics Board? From the Desk of Dr. Danielle Meadows Vice President of Research Programs & Operations The IRB plays a central role in the first stage of the research process—linked here again if you missed it—so
From the Desk of Dr. Danielle MeadowsVice President of Research Programs & Operations Today, I’m happy to share another update on a study that I introduced back in November 2024 in an interview with Dr. Systrom. The study is still
Today, we’re sharing an update on important developments in ME/CFS research — work that is steadily improving our understanding of the biology behind this complex and often life-altering condition. Whether a person’s ME/CFS began decades ago or more recently, the
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