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NIH Report Shows OMF Is on the Right Track

NIH P2P press release on ME / CFSThe NIH released its P2P (Pathways to Prevention) report with suggestions on what types of ME / CFS studies should be conducted. As most expected, the panel called for a singular and better diagnostic criteria to be used in research, or at least for more details of cohorts to be given so comparisons between studies can easily be seen to be of the same, overlapping or different segments of the ME / CFS disease population.

Our ME / CFS Severely Ill-Big Data Study is designed to solve this problem by moving beyond symptom-based criteria and instead finding the most useful diagnostic biomarker. By looking at many different biological processes in the same patient, we expect to get a fuller picture of the disease process and possibly subgroups than has been revealed in previous studies.

Interestingly, the P2P panel also said that the homebound patients had not been substantially included in previous ME / CFS research, which they said should be addressed in future research. As the name indicates, our ME / CFS Severely Ill-Big Data Study will finally give a complete look at these often ignored patients. We know whatever dysfunction is causing the symptoms should be worse in those whose symptoms are worse.

We agree with panel chair, Carmen R. Green, MD: “We need to learn more about the cellular and molecular mechanisms of this disease and how immunologic, neurologic, and other factors contribute to ME / CFS.” Thanks to our ME / CFS Scientific Advisory Board, we’ve gone beyond just saying what needs to be done; we’re doing it.

What can you do? 1. Donate toward the ME / CFS Severely Ill-Big Data Study so we can get more severely ill patients included and get this study completed sooner rather than later. 2. Spread the word of this study to your friends through social media and email and calls. 3. Host a FUNdraiser. 4. Urge your congressman to advocate for the NIH to put ME / CFS a research funding priority.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

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Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
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  • Questions? Give us a call at 650-242-8669