The Harmony St. Ceacillia orchestra performed on 18th of November, 2018 in a benefit concert for OMF following a screening of the award-winning documentary, Unrest. The program, organized by Rene Robert, was held at the community centre, Dorpshuis De Stek in Grootebroek, Netherlands.
Robert has a very deep, personal connection to ME / CFS. He shared the following, “I promised my niece “Denise de Hoop” on her deathbed that I will continue her battle to get recognition for ME / CFS. Her words were printed with big letters in the Noord Hollands newspaper on the day she died. “I didn’t have to die”.
He continued, “Let’s all make sure this will never happen again. Spread the word, inform everyone because Enough is Enough. WE WANT TO LIVE NOT JUST EXIST.”
In Dutch, Robert’s words:
“Ik heb mijn nicht “Denise de Hoop”op haar sterfbed beloofd de strijd voor erkenning van ME van haar over te nemen. De woorden van Denise, stonden op de dag dat zij overleed met grote vette letters op de voorpagina van het Noord Holland dagblad.
Laten wij met z’n allen zorgen dat het ook niet meer gebeurd!
Verspreid het woord, informeer iedereen met de film Unrest want: Het is genoeg geweest.”
René Robert oom van Denise
Robert is using the film Unrest to educate and raise awareness. He added the concert to make this a very special event.
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